The MMS, in an effort to harmonize care for rare disease, tirelessly works to advance education, research, and global collaboration in clinical mitochondrial Medicine. The MMS worked to develop consensus criteria for diagnosis and management to improve patient coordinated care, and developed a mito clinical care network in the USA. Mito experts from across the globe work together and share their work through this site.
As a hub for treatment of complex pediatric conditions, Miracles for Mito is proud to partner with Children's Colorado for research and clinical care. Our two Mitochondrial specialists at Children's are leading scientific breakthroughs in this space.
MitoAction's mission is to improve the quality of life for children, adults, and families living with mitochondrial disease through support, education, outreach, advocacy, and clinical research initiatives.
MitoAction's website provide's useful family support information. Their facebook page also hosts an active group of patients, families and care-givers
Stealth BioTherapeutics is an innovative biopharmaceutical company developing therapies to treat mitochondrial dysfunction associated with genetic mitochondrial diseases and common diseases of aging. Their team works with patients and advocacy organizations to better understand the journey with mitochondrial disease and raise awareness of the unmet need our programs seek to address.
A moving blog page created by Maria Hopfgarten, this site is a tribute to her son, Jacob Benjamin Hallberg. Jacob passed away at age ten from mitochondrial disease.
The mission of the UMDF is to promote research and education for the diagnosis, treatment, and cure of mitochondrial disorders and to provide support to affected individuals and families.
The UMDF partners with doctors and researchers around the world in a collaborative effort to find therapies and a cure. We are proud to collaborate with the UMDF in providing Grand Round education and to assist with their international mitochondrial symposium.
Sponsored by Stealth Biotherapeutics, TheCharge.com is a community of doctors, researchers, advocates, patients and caregivers dedicated to raising awareness, providing useful information and empowering our mitochondrial community
People Against Leigh Syndrome (PALS) is dedicated to research and awareness of Leigh's Disease, a mitochondrial disease characterized by lesions on the brain.
Heather Schichtel's blog site about her life experiences with her daughter Samantha, a beautiful girl who passed away from Mitochondrial Disease. This site also contains many useful and relevant links to Mitochondrial resources.